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"Children with rare diseases are so often left to feel like they are ‘different’ or ‘unique’ and all they want to be is like every other child, to be able to do and experience the same things as their peers. Having a bicycle like the ‘other kids’ means a lot to these children and to their families. As one mom said to me, 'Anything that brings normality to my child’s world makes a huge difference, not just for him but also for us as parents.' To some extent, programs like this one are as important for ill children as are the programs that support the research that will one day hopefully find cures."

 

  Christele du Souich, MSc, CCGC, CGC, Researcher
The Rare Disease Foundation

  

Each year the ACMG Foundation for Genetic and Genomic Medicine with the support of our dedicated corporate partners and medical genetics and genomics professionals from around the world, host the Annual ACMG Day of Caring event. During the 2017 ACMG Annual Meeting in Phoenix, AZ., ACMG partnered with The Little People of America and The Muscular Dystrophy Association to provide new bicycles and helmets to children with genetic disorders.

 

To learn more about the amazing and heartwarming ACMG Foundation Day of Caring, visit News Releases ​​​

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Donate here to the Day of Caring project! Use Appeal Code "Day of Caring." Sponsor a bicycle in honor or memory of a mentor or loved one for $1,000 or a donation in any amount to support the overall program. For more information, please contact us at acmgf@acmgfoundation.org or call us at (301) 718-2014.

 

For more information on becoming a corporate sponsor of the Day of Caring, please contact Nicole O. Bell, at the ACMG Foundation for Genetic and Genomic Medicine, at (301) 718-2014 or nbell@acmg.net.