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"Children with rare diseases are so often left to feel like they are ‘different’ or ‘unique’ and all they want to be is like every other child, to be able to do and experience the same things as their peers. Having a bicycle like the ‘other kids’ means a lot to these children and to their families. As one mom said to me, 'Anything that brings normality to my child’s world makes a huge difference, not just for him but also for us as parents.' To some extent, programs like this one are as important for ill children as are the programs that support the research that will one day hopefully find cures."


  Christele du Souich, MSc, CCGC, CGC, Researcher
The Rare Disease Foundation

  


Each year, the ACMG Foundation for Genetic and Genomic Medicine with the support of our dedicated corporate partners and medical genetics and genomics professionals from across the country, host the ACMGF Day of Caring event during ACMG’s Annual Meeting. The Day of Caring partner with local non-profit organization’s to provide adaptive bicycles for children living with genetic disorders.

 

The non-profit organizations that will be represented at the 2018 Annual Meeting in Charlotte, NC are: Little People of America (LPA), Piedmont Health Services and Sickle Cell Agency, and the United Mitochondrial Disease Foundation. Collectively, ACMGF plan to provide 20 bikes. For more information about the day of caring, please contact Nicole Bell at nbell@acmg.net or at (301) 718-9603.

 


To learn more about the amazing and heartwarming ACMG Foundation Day of Caring, visit 
News Releases 

For more information on becoming a corporate sponsor of the Day of Caring, please contact Nicole O. Bell, at the ACMG Foundation for Genetic and Genomic Medicine, at (301) 718-2014 or nbell@acmg.net.